Shara's Cancer Blog

Cancer Blog Entries Archived by Date

2020 (1)

February (1)

Coping: I recently lost 10lb unintentionally.  I found out when I went to the doc for symptoms of bronchiti...

2019 (1)

November (1)

Muscle fibrosis: I am six years out from the end of chemo/radiation for stage IV NPC.  Lately, I have been having a ...

2015 (4)

May (3)

Dry mouth and snorkeling: I will be taking a beach vacation in June and will have the opportunity to do some snorkeling.  How...
Dry mouth and snorkeling: I will be taking a beach vacation in June and will have the opportunity to do some snorkeling.  How...
Dry mouth and snorkeling: I will be taking a beach vacation in June and will have the opportunity to do some snorkeling.  How...

February (1)

Paul?: Does anyone know what happened to Paul? ...

2014 (5)

December (1)

A new title: I just gave myself an early b-day present. I changed my status on my profile from "cancer fighter" ...

August (1)

new lip twitch: Has anyone on here had a tumor that affected your trigeminal nerve? I'm currently cancer free (naso...

April (1)

NED!: I'm still in shock that my PET scan showed NED! My doc told me he reviewed it as soon as it was ava...

March (1)

Feeling alone and anxious: I have a follow-up PET scan in Houston on Monday. My anxiety has been manageable but hitsme hard fr...

January (1)

Finished treatment: I finished my chemo/radiation on December 20, 2013.  It felt so good to ring that bell!!!  It was ...

2013 (2)

November (2)

Bad taste: I just finished 3of 7 weeks of radiation/chemo.  The taste in my mouth is horrendous and drinking f...
Looking for support from NPC survivors: I have looked all over the web to find others with NPC.  Mine is a "bulky" tumor, stage IVA and fro...
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Vital Info

Posts

November 17, 2013

United States

December 31, 1970

Cancer Info

Nasopharyngeal Cancer

Nonkeratinizing squamous cell

July 30, 2013

Stage 4

3.1 - 4.0 cm

Yes

The uncertainty of whether it will kill me or not.

Live each day like it's your last.

Pray and encourage me when I'm down.

Induction chemo with monoclonal antibody (cetuximab)

Prayers

MD Anderson Cancer Center, Houston, TX

Try hard to find things that taste okay so you can maintain your weight and swallowing during radiation to head and neck.

If you are religious - focus on your family and pray and remember God is always with you. If not religious - focus on your family and getting through it so you can continue to be in their lives.

December 21, 2013

April 1, 2014

Fullness in right ear, sinus headaches, tingling and numbness in upper right lip and cheek area near the nose, right side of tongue and right side of roof of mouth sensitive to salty and acidic foods

Started radiation on 11/4/13 after 6 weeks on induction chemo

Started cetuximab on 9/5/13 along with induction chemo as part of a clinical trial - skin rash on face, chest, back, and lower legs similar to acne (very painful), swollen lymph nodes which caused pain in the neck and back of head, severe itching, cracked corners of mouth that were extremely painful.

Stats

Posts: 13
Photos: 2
Events: 0
Supporters: 35
Friends: 26
Comments:
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